Monday, 21 April 2008

A Little Set Back

Funny how i almost predicted i needed to rest!!!

after the writing my last post on Sat night, i had a good night sleep, but woke up in the morning and i could not feel my LEGS!
at first i thought i was dreaming. i sort of stayed in bed for a little bit longer thinking the feeling will come back, i just haven't woken up yet. half an hour later, nothing, i can't move my feet, either of them. i tried to do my meditation but couldn't get into it. i felt a dehydrated, so tried to get up to drink some water, it was very difficult getting up. i was in the room on my won, it was scary.
it took me a couple of hours to get myself together, i drank some water and took my pain killers and sat upright on my bed searching for reasons as to why this was happening. it was a very dark moment, i had tears on my eyes, i just couldn't believe it. i could not even stand on my legs to go to the toilet. But i was walking a few days ago, i had been walking with 1 crutch most of the week, i've been doing my exercises. if i was overdoing it, i would just be a little tired, i wouldn't loose all feelings, go back to point ZERO! what was happening?

all i could think of was to call Vincent, the guy that gave me the massage and helped me walk again. so i called him and he was very calm on the phone. he said to go in and have a massage, it's probably a nerve that has come out of place and this set backs happen often, almost to everyone. 1 step back, 2 steps forward. he was very reassuring and it helped.

i got myself together and Dell picked me up and took me in. it was very hard, i never thought i could make it out of bed.
i went to see Frank, the robot fingers. he had one look at me and said my hip/pelvis was totally twisted. my abs are not strong enough to hold my pelvis in place and it was normal. he did his thing and that got a few muscles moving.
i was in no pain, just no movement, i try to move my feet, my feet don't move. so frustrating.

i came out of Frank's treatment room feeling better, more confident it was temporary set back.
Suddenly Vincent appeared. on his day off, he had decided to come and see me, and make sure i was OK. i was so touched, so pleased to see him, but i felt bad he had spent his sunday driving up (in US everywhere is miles away) to see me. he took me to a quiet corner and did some more work on my legs, back and neck, we had dinner together and he took me home. what beautiful soul. as he left my place, i lied in my bed and fell asleep with the light on. i kept the light on all night, didn't want to be in the dark. i woke up a few times in the middle of the night, tried moving my legs, but no feeling at all. so disappointing, so dark and depressing. i hadn't had this feeling since the day i was told my cancer was all over my back, and chest. for the first time, that feeling of despair was coming back. i went back to sleep and hoped it would get better by the morning.

i had blood test this morning, and i really wanted to go so that i could see the results. this was one appointment i could not miss. i got up at 6 and started to somehow stretch y body and get some blood circulation going on. so hard, i just could see how i could make it out of the bed. i was convinced for a about 20 minutes that i would be bedridden for a couple of days at least. NIGHTMARE.

It was 8 and Dell was knocking on the door. how do i let him in? i can't get up. i don't know how, but i somehow managed to get up and drag myself to door, let him in, and from then he helped me on. he got my WHEELCHAIR for me. yes back in the wheelchair. everyone was coming over all day and encouraging me that it was a small set back, and they are right. i also heard how it happens to so many people, very lucky i'm staying a 4th week, and i have good support here.

i started talking to various staff straight away to understand why this had happened. the reason why i lost the feeling in my legs was because my spine was compressed by the tumor pressing on it. so this was happening again. i'm very confident it's not the tumor growing back, it would not happen over night. it would happen over a few days like it did before. also with this diet, i'm confident the tumor is stopped dead in its tracks. i feel much better overall. so what is pressing against my spinal cord! the only thing i could think of is i had too much nut ice cream (3 servings, should only have 1) on Sat night followed by cooked (i didn't know!!!!) tortilla wraps. they are both very difficult to digest and produce a lot of gas in the stomach if you are not strong to handle them. i felt my stomach and it was very hard. i wheeled myself to the colonic room as quick as i could, and asked the clonic lady what she thought, she touched my stomach and oh boy, she was amazed. very lucky for me, the lady whose appointment was at 9, gave me her place and i went in for a clonic. i had enough gas coming out of me to power Florida for a day. i came out feeling much better, still no feeling in my legs but a lot more relaxed and upper body strength. i have another clonic tomorrow with abdominal massage before hand, i'm hoping that this will make even a bigger improvement. unfortunately i have to go through the process of rebuilding my nerves and muscles again, but that's a small worry.

i have learnt another big lesson, how sensitive our body is in recovery mode. it requires patience and taking it slow. the 2 attributes i miss dearly in life. it has also taught me not to loose faith, believe in what you are doing even when you're having a set back. we can't help having negative thoughts, i think that is almost impossible, but we must stay positive. don't be flaky.

so i fasted on juice today and blended my food so i would ease my digestion. the same tomorrow and Wednesday. i'm going to do Frank's exercise routine every morning, lunch time and evening to get my abs strong and take it slow.

i'm writing this sitting in my wheelchair, i'm just as positive as i was on Sat, a little unhappy as i've lost some of my independence and freedom, but i'm on the right track and i'm sure i will make bigger recovery this time round. i'm going to take my time and be more careful.

i enjoyed reading everyone's comments. you don't know how happy it makes me when i get new comments.
i would love to reply to everyone, but i need to time to do my things, i will get back to everyone individually when i have the time. but please keep the comments coming. i love hearing from new people and people i don't know who have discovered the blog through friends. it's very inspiring for me to know people are enjoying the blog.

all my love
to life force and positive attitude
reza

15 comments:

Bàquico said...

I read every morning. Especially since I starting using my outlook calender reminder. I smile, I stare, I wipe my eyes . . .sometimes. I want to say something clever, funny, loving, honest, but mostly I just want to scream. He has so much left to do! So much more to say! Come on man. Criminal Clothing was nothing compared to what you will do. I know it. I feel it. I am awed by it. 'and, when all is said and done, this will only be a chapter in the amazing story of Reza.

lots of love
Gary

Anonymous said...

Reza. To have come so far so quickly and then to have a setback is very normal. It happens in every aspect of life especially in recovery. I am not worried by this at all. In a way it may be a blessing and slow you down. Moh posted an interesting blog yesterday, he was concerned you were pushing it too much and he was right. You have come such a long way in such a short time. Now get in that slow lane, drop it down to third gear and drive slower please. No hurry whatsoever. I think your bravery is astonishing and wish you didn't have these dark moments but these terrifying times make you even stronger Rez. We are with you and sending life force you're way. LOVE LOVE LOVE.
Parker.

Za said...

Dear Reza,

If it makes you feel any better, it took me over half and hour to get out of bed this morning and as you know, it normally takes Moh a lot longer than that!

Probably not even a set back Reza, your body's just saying give me a break for a second. I agree with Moh, you need to take it easy. What were you thinking, a few tentative steps without your crutches followed by 20 minutes on the dance floor - you're crazy!

It sounded like a scene from the Hillbillies with you hopping round to the drums and a violin!!

I hope today has been brighter for you and keep away from the Mexican food.

Za

Unknown said...

keep the faith Reza... you can do this x

Unknown said...

Reza always has had setbacks and always pulls through on TOP. Man, I was laughing re the gas!! That could be your next business! Imagine a organic gas fusion complex with the ability to generate electricity. Its green too… heheh GO REZA…I love you. Arash!

suzanne said...

hey rez...hope your feet are moving better today. the blog is truly wonderful to read...very powereful and inspiring. i must admit it makes me shed a tear...i want to see you better babes. i know you can do it. i cant wait to see you back in action and ready to set up a new business venture. no doubt it will end up a multi million empire knowing you. have you thought about making your blog into a book by the way? i am sure it could inspire and help many.
love you rez. keep going baby cheeks. nothing good is easy x

suzanne said...

hey rez...hope your feet are moving better today. the blog is truly wonderful to read...very powereful and inspiring. i must admit it makes me shed a tear...i want to see you better babes. i know you can do it. i cant wait to see you back in action and ready to set up a new business venture. no doubt it will end up a multi million empire knowing you. have you thought about making your blog into a book by the way? i am sure it could inspire and help many.
love you rez. keep going baby cheeks. nothing good is easy x

Nadereh said...

Reza Dear,

You have one more angel added to the list of angels around you. The wonderful Supervisor at Fedex, named Diane, has been so helpful, and is making sure your two main packages get to the U.K. by this Firday! Another wonderful soul.

I hope this set back with your legs will only be a minor one, and one that you will fly right over, with no major pumps. You are of strong mind and spirit, and I know you'll persevere.

I give you a BIG HUG from afar and wish you all the best.

Love,
Nadereh

Bambino said...

A little set back my love is only going to make you stronger (come on Kanye and Daft tell us how it is!!) Dont be scared, just be patient. Your body is going through so much, just allow it to take its course cos if its anything like me and my driving, its bound to take a wrong turn somewhere (even when ive got the TOM TOM out!!!!) Youre going to be just fine! Keep up the positive thoughts and bring on the positive future!! Youre a star babe and you'll never stop shining... i can see you from here! xo

jamie said...

Reza,
i have just started to write this about 5 times and started again...I hope the set back is history now and you have had a chance to chill and feeling more on top now. Much love from me and everyone here at Strange. xxx

Jade said...

Nadereh, Moh said to let you know that they have received the packages, Thank you so much X

payman said...

mon cher cousin reza
on est samedi et on est revenus des alpes hier avec les enfants qui se sont bien amusés là-bas
j'ai relu ton blog ce matin et ça m'a rendu triste que tu aies reperdu tes sensations dans les pieds mais je suis sûr que ça va revenir
je vais essayer de te parler ce matin vers 10h si tu as envie de parler
j'ai parlé avec moh hier et il m'a mis au courant que les medecins ne comprenaient plus rien et ne savaient plus ce qui se passaient mais c'est typique des medecins qui ne comprennent que les choses qu'ils peuvent rationnaliser avec leur science cartésienne.
En tout cas reste comme tu es : positif ,fort et garde la foi en tes capacités extraordinaires de rebondir et d'évacuer cette saloperie de ton corps
tu vas y arriver
tendres baisers
ton cousin
payman

Emma said...

Hi Reza
Hope you are feeling better now...It was good to see your positivity coming through the darkness at the end of your blog...

I am sure people dont expect personal responses from you to all their comments - I think people comment only to send you their thoughts and positive energy and dont expect something in return.

So Ill add my cyber hug to everyone elses - blog when you choose to, not when you think you ought to...

Emma xxxxxxxxxxx

mitch said...

Alright Gezza,

Just had a little catch up on the blog I haven’t had a look for a few weeks due to internet probs but its amazing to see the progress. You’re doing so well mate!! just leave the dance floor alone for a few weeks.

I normally read the blog on Saturday afternoons when the shop goes quite but I had to change days because people think you’re a bit strange when your selling them t shirts in tears so I do it Mondays now…

I really think you should write a book after all this is over you are very inspirational and mentally strong and I think It would be good and very helpful for other people in your situation. Have ever thought about it ??

Got to serve another pregnant girl under 16 now!!! Good old Poole Pikeys!!!

Catch up soon

May the life force be with you!!

Oh and let me know if you need anything sent over.

Your amazing, keep strong


Mitch

Unknown said...

Reza, you really are amazing.Your blog is so inspiring and an incredible force for good. We´re all thinking about you, sending you so much love and respect and Rez, we´re there with you holding your hand through all of this. You´re not alone, not for one minute. We´re there when you feel scared and when it´s dark inside and we´ll always be there. By sharing your experiences with us all, you are creating something very special and beautiful. Please keep sharing your life with us and know that we´re here whenever you need us.

Footprints in the Sand

One night I dreamed I was walking along the beach with the Lord. Many scenes from my life flashed across the sky.

In each scene I noticed footprints in the sand. Sometimes there were two sets of footprints, other times there was one only.

This bothered me because I noticed that during the low periods of my life, when I was suffering from anguish, sorrow or defeat, I could see only one set of footprints, so I said to the Lord,

“You promised me Lord,
that if I followed you, you would walk with me always. But I have noticed that during the most trying periods of my life there has only been one set of footprints in the sand. Why, when I needed you most, have you not been there for me?”

The Lord replied, “The years when you have seen only one set of footprints, my child, is when I carried you.”

xxxxxx Sam